Key places - Places to check - Industry scandals - Academic research - Leading death causes - Documentaries - Nutrition - Personal health dashboard - To do - See also

"Studies show that about 80% of material that people find on the Web about medical care is commercialy motivated either or not its identifiable as such." by John Abramson (cf Money Talks at about 30min45, documentary resources)

Key places

• World Health Organization (WHO)
  • multiple RSS feeds
• PubMed a service of the U.S. National Library of Medicine
• European Medicines Agency (EMEA)
• U.S. Food and Drug Administration (FDA)
• U.S. Open Government at Health and Human Services (HHS) including Data Sets and Tools

Places to check

Mini Med Schools - Community based - Big information corporation - Real-time information - Health software - Quality of life - Personal genomics - Exoskeleton - (radical) life extension - Sleep - Mood - Ergonomy - Impact of information technology on the brain

• mini med schools
  • Stanford Mini Med School, Stanford University School of Medicine
    • several videos watched and LinkOfTheMonth#July2010
  • UCSF Mini Medical School for the Public, UCSF Osher Center for Integrative Medicine
• community based
  • The Health Commons
  • Health Wiki - A List of Wikis About Health and Fitness by Daniel Nations, About.com
  • My Home Remedies extensive catalog of home remedies with rating system.
  • Microsoft Health Users Group (MS HUG)
  • Quantified Self Meetup Group of The Bay Area (founded in July 2008)
  • CureTogether manage your own health
• big information corporation
  • tour of Google Health
  • Yahoo! Health
  • HealthVault by Microsoft
• french media
  • France 5 le magazine de la sante
  • France Televisions bonjour-docteur
• real-time information
  • Twitter accounts
    • FluGov by pandemicflu.gov
    • WHOnews by WHO
    • CDCEmergency by the CDC
  • FluTracker - H1N1 Swine Flu and Influenza Outbreak Tracking by Recombinomics and Rhiza Labs
• health software
  • Killed by Code: Software Transparency in Implantable Medical Devices, Software Freedom Law Center July 2010
    • "At the very least, we urge the FDA to establish a repository of medical device software running on implanted IMDs in order to ensure continued access to source code in the event of a catastrophic failure, such as the bankruptcy of a device manufacturer."
  • Pacemakers and Implantable Cardiac Defibrillators: Software Radio Attacks and Zero-Power Defenses 2008 IEEE Symposium on Security and Privacy
  • Karen Sandler, "Free Software on Medical Devices: Unchain My Heart", OSCON 2010
  • Medical Device Security Center A cross-disciplinary research initiative on medical device security, privacy, safety, and effectiveness
  • consequences for ScanningNotes#TowardReplacementPartsForTheBrain
  • Wikipedia:Therac-25
  • http://www.GPLmedicine.org
• quality of life
  • Quality of Life | EU - European Information on Health & Lifestyle, EurActiv.com 2007
  • Quality of life and the related quality of life index according to Wikipedia
• Personal genomics
  • Table: Personal Genomics Technology Review March/April 2010
  • Eye on DNA How will it change your life? by Hsien-Hsien Lei
  • sequencing B2C companies
    • deCODEme
    • 23andMe Genetic Testing for Health, Disease & Ancestry; DNA Test
      • Googling the Googlers' DNA: A Demonstration of the 23andMe Personal Genome Service by Linda Avey, GoogleTechTalk 2008
    • Navigenics
  • Pimp my Genome! The Mainstreaming of Digital Genetic Engineering by Andrew Hessel, Google Tech Talks 2007
  • Personal Genome Project Volunteers from the general public working together with researchers to advance personal genomics.
  • genes browsers/databases
    • Ensembl Genome Browser vertebrates and other eukaryotic species
    • NIH NCBI Gene from RefSeq genomes, and defined by sequence and/or located in the NCBI Map Viewer
    • UCSC Human (Homo sapiens) Genome Browser Gateway
    • SNPedia wiki investigating human genetics.
    • UTGB Toolkit, Human genome browser (still TBA in early September 2010)
  • Biologists tackle cells' identity crisis by Alla Katsnelson, Nature News June 2010
• exoskeleton
  • Tsukuba Cybernics Lab Robot suit HAL Hybrid Assistive Limb
  • UC Berkeley Human Engineering Laboratory Medical Exoskeleton
  • Jerusalem Argo Medical Technologies ReWalk
  • Yobotics RoboWalker and RoboKnee
  • Raytheon 2nd Generation Exoskeleton Robotic Suit (XOS 2)
  • A DIY Exoskeleton Concept by Ben Millet, Gizmo Watch 2008
  • DIY About: Real Mecha (NMX04-1A), neogentronyx.com 2007
  • The Open Prosthetics Project producing useful innovations in the field of prosthetics and freely sharing the designs.
• (radical) life extension
  • Wikipedia:Life extension
  • Wikipedia:Aubrey de Grey
  • Why We Age (WWA) The Longevity Resources
  • The Longevity Meme ideas and actions for longer, healthier lives
  • Immortality Institute Advocacy & Research For Unlimited Lifespans
  • SENS (Strategies for Engineered Negligible Senescence) Foundation Human Regenerative Engineering
  • Vitae Institute
• sleep
  • Personal Growth Series: Dr. William Dement on Healthy Sleep and Optimal Performance, GoogleTalks 2008
    • ~min51 mention of sleep phases as part of an homeostatic process
  • Sleep Cycle alarm clock for iPhone
  • Wikipedia:Circadian rhythm Wikipedia:Cataplexy
  • La "Balance du Sommeil" dans Atelier du sommeil pour Sommeil et médecine générale
    • English equivalent
  • Horizon 2008-2009: Why Do We Dream?, BBC, February 2009
  • Wikipedia:Polyphasic sleep, Poly Phasers community including its IRC freenode channel
  • rules I follow (which should be better enforced, shared on http://www.quora.com/How-do-I-develop-the-habit-of-sleeping-early )
    • practice sport in an intensity proportional to the excitement of your current project
    • no tea/coffee/energy drink after 9pm
    • eat light and early too
    • go to bed early
    • prepare your next day upfront (bag, breakfast, etc...)
    • no electronic devices from the bedroom
    • no alarm clock facing the bed
    • take few minutes to relax on your back breathing
  • link between sleep and learning
    • own view
      • all events creates memories but those with stress increasing or relieving events create specific properties, cf WithoutNotesMay11#SocialAllostasis or ClickingMoments#Neurochemistry, like other cognitive mechanisms via physical changes, in particular physiological i.e. chemical
      • during moments with minimum external stimuli gathering, e.g. during sleep, recent memories e.g. of the previous day, are stacked by intensity of those stress related markers and then re-experienced appearing like a continuous event or "story"
      • this facilitate better encoding of what should most likely postively impact surviving by trying to pre-process complex fight of flee patterns to be later on executed in real time
      • note that such stress related event can be socially simulated, e.g. homework that will scored by the teacher the next day, major examination, etc... cf MentalExercises
  • "normal" problems
    • Wikipedia:Sleep paralysis, Wikipedia:Cataplexy and Wikipedia:Hypnic jerk
    • most that I did experience myself, cf DreamLog
  • "get more energy. Sleep" Center for Sleep Disorders campaign
  • Zeo Personal Sleep Coach
  • X:enius - Le changement d'heure est-il nocif pour la santé ?, Arte November 2010
  • Redshift by Jon Lund Steffensen
    • using it since mid-July 2011
• mood
  • see ImprovingPIM#Emotions for an attempt of integration within a PIM
  • Moodler.in mood tracker
  • Mood Tracker Online Tools for Depression and Bipolar Disorder
  • myPsychTracker Symptom and Journaling Manager
  • MoodJam, Carnegie Mellon University
  • MoodSpin Express how you feel beyond words
• Ergonomy
  • kneeling chair
    • Pelvic Neutral Posture by SepiaTechnique
    • government websites regarding posture, attention and other problem for knowledge workers
    • gave it away after few months, was probably too small
  • PostureMinder started the 26th of May 2010
    • stopped few months after but overall good tips
  • Ergonomic Self-Evaluation Tool by Columbia University
• Impact of information technology on the brain
  • motivated by Discussions:fabien/kenzaseddik.log 7 August 2011 at 18:05
  • Offloading Cognition onto Cognitive Technology, 2008
    • to consider with projects like ROS or RoboEarths in Electronics#Robotics that aims at sharing behaviors and solution amongst a grid of robots and their researchers (or vice versa) which do realize such a project of cognitive commons but for robotics
    • mentioned in PersonalInformationStream/WithoutNotesSeptember10#GTDHeylighenVidal and Seedea:Content/Newconcepts#CognitiveCommons
  • Your brain on Google: patterns of cerebral activation during internet searching, Am J Geriatr Psychiatry 2009
    • rediscovered during WithoutNotesAugust11#MindAndMachineTheFutureOfThinking
  • Microstructure Abnormalities in Adolescents with Internet Addiction Disorder, PLoS ONE June 2011
  • Google Effects on Memory: Cognitive Consequences of Having Information at Our Fingertips, Science July 2011
    • cf WithoutNotesJuly11#GoogleEffectsOnMemory
  • see also Internet regarding the structure and properties of Internet in general
  • WithoutNotesOctober10#WhatsTheInternetDoingToOurBrains
  • How Is The Internet Changing The Way You Think?, Annual Question, Edge 2010

Academic research

• Nutrition and Metabolomics: Bringing Personalized Diet and Health to Practice by J. Bruce German, University of Kentucky September 2009
  • J. Bruce German's homepage at UC Davis Food Science & Technology
• BioCatalogue.org providing a curated catalogue of Life Science Web Services
• Human Epigenome Project (HEP) aims to identify, catalogue and interpret genome-wide DNA methylation patterns of all human genes in all major tissues.
• Mapping the Human ‘Diseasome’ NYTimes.com 2008
  • 
• Center for Body Computing at University of Southern California (USC)
• Human Interactome Map dynamic browser for the human protein-protein interaction map.
• Healthcare spending and life expectancy: a comparison of graphs by Andrew Gelman, Statistical Modeling, Causal Inference, and Social Science December 2009
• neuGRID e-infrastructure data archiving, communication and computationally intensive applications in the medical sciences
• Journal of Medical Internet Research (JMIR)

Leading death causes

Overall interesting to track in order to counter any eventually media sensationalist bias.

• Do Fear the Reaper: Readers Visualize Death Data by Alexis Madrigal, Wired.com 2008
• Leading causes of death--bubble diagram on Many Eyes, uploaded by humancentered using data from National Center for Health Statistics, 2008
• U S National Vital Statistics Reports by the Centers for Disease Control and Prevention
• Swine flu So very overhyped.

Nutrition

• Cooking For Geeks by Jeff Potter
• NutritionData.com Nutrition facts, calories in food, labels, nutritional information and analysis
• Cookbook.Food
  • including eventually The Hacker's Diet How to lose weight and hair through stress and poor nutrition by John Walker, 4th ed 2005 with its The Hacker's Diet Online companion
• The Health Voyage project
• Food & Nutrition Examples at Wolfram|Alpha
• Women, Men, and Food Harvard@Home 2007
• Sugar Stacks - How Much Sugar Is in That? "show how the sugars in your favorite foods literally stack up, gram for gram."
• NutritionData.com Fullness Factor "consume fewer Calories without feeling hungry"
  • subscribe to the website in order to keep the list of aliments, the amount of calories and being able to run comparisons
• FatSecret Platform API "access the FatSecret Platform and support the building of applications."
  • Javascript and REST APIs
• Lactose Intolerance, including The Home Do-It-Yourself Test, by Jackson Siegelbaum Gastroenterology
• watching notes on Nutrition Made Clear
• previously discovered content about the evolution and history of human nutrition
• Data not drugs by Brian Ahier, O'Reilly Radar February 2010
  • including from The Decision Tree by Thomas Goetz
    • linking to Medpedia started in 2007
• Snake Oil? The scientific evidence for health supplements David McCandless and Andy Perkins, Information Is Beautiful January 2010
• Michael Pollan on Food Rules: An Eater's Manual, Book Passage January 2010
  • http://en.wikipedia.org/wiki/Carbohydrate#Nutrition
  • ~min16 04. Cultural Wisdom About Food talking about culture as "a very darwinian process"
  • Health Notes # 11 "The Whiter the Bread the Sooner You're Dead!"
• Horizon - Did Cooking Make Us Human?, BBC March 2010
• Sugar: The Bitter Truth by Robert H. Lustig, UCSF 2009
• Live Cultured Fermentation by Benjamin T Stanley, Google Tech Talks March 2010
  • Benjamin T Stanley twitter account http://twitter.com/chefbtstanley
  • Free Fermentology Foundation
• Nutrients for Better Mental Performance by Steven Wm. Fowkes, Google Tech Talk 2009

Documentaries

• Money Talks: Profits Before Patient Safety 2008
  • Merck Makes Phony Peer-Review Journal, BioEthics.net, May 2009
  • Consumer Reports Best Buy Drugs
• Generation RX by Kevin P. Miller, Commons Radius 2008
• Le patient qui valait 3 milliards by Martin Gronemeyer, Robert Cibis, ZDF 2008
• Massage ou pontage - Le business du tourisme médical by Wolfgang Luck, ZDF 2008
• Making A Killing: The Untold Story of Psychotropic Drugging, produced by Citizens Commission on Human Rights 2008
• Grippe A, un virus fait débat, Arte October 2009
• Horizon, 2009-2010, Pill Poppers, BBC January 2010
  • impressively automated process of discovery displaying GSK pharmaceutical molecular laboratory
• Horizon, 2009-2010, Why Do Viruses Kill?, BBC January 2010
• Peter Singer: "The Ethics of What We Eat", WilliamsCollege December 2009
• The End of the Line : Imagine an ocean without fish 2009

Industry scandals

• Présentation du "Grand secret de l’industrie pharmaceutique" by Christian Lehmann, Attac France 2005
• Merck Makes Phony Peer-Review Journal, BioEthics.net May 2009
• Pfizer To Pay Record $2.3B Penalty For Illegal Drug Promotions, HuffingtonPost September 2009
  • with its timeline thanks to Dipity

Personal health dashboard

To organize

• Health 2.0 to the community of visionaries, entrepreneurs, intrapreneurs, policy makers, and professionals who are working on fundamentally redefining the healthcare industry along the lines of "Web 2.0".
• Health 2.0 Conference and its blog
• Highlight HEALTH an online news site for health consumers and healthcare providers
• Health and Medicine by ResearchChannel
• Prescrire apporter aux professionnels de santé, et à travers eux aux patients, les informations claires, synthétiques et fiables dont ils ont besoin, en particulier sur les médicaments et les stratégies thérapeutiques et diagnostiques.
• eyeforpharma.com Pharma strategy for the busy executive
  • with Sales, Patient Compliance, Marketing, Forecasting section
• Dr Marc Girard recommanded by Kenza
• Open Source Medicine group Facebook
• GNU/Linux And Open Source Medical Software News started in 2000
• Rejuvepedia rejuvenating the human body on an system-by-system, organ-by-organ, tissue-by-tissue, cell-by-cell and gene-by-gene basis.
• CeGD eGovernance Academy Seminar Series 2010 - SEeHealth: The Roadmap from Concept to Practice
  • why, how, when and with what tools eHealth systems can be set‐up in their respective countries, taking into account the specific (policy, social) environment of each individual country.
  • Events - SEeHealth at Centre for eGovernance Development
• The Human Body as a Subway Map by Sam Loman, information aesthetics March 2010
  • 
• PatientsLikeMe Patients Helping Patients Live Better Every Day, started in 2005
• WikiGenes - Evolutionary Knowledge A wiki for the life sciences where authorship matters
• Human Aging System Diagram (HASD) developed by the Research Center of Advanced Technologies (Moscow, Russia)
• Hair Problems MedlinePlus, National Institutes of Health
• Discovery Series Vanderbilt University Medical Center
• Computational physiology
  • Wikipedia:Physiome
  • labs
    • http://www.comlab.ox.ac.uk/activities/computationalphysiology/
    • http://lcp.mit.edu/
    • http://www.rle.mit.edu/cpci/
    • http://www.cpl.uh.edu/
    • http://cpl.cornell.edu/
• Harvard Medical Labcast

To do

• improve Fabien.HealthDashboard
• understand chemical efficiency and dependency
  • find the quantity and frequency that maximize efficiency while minimizing tolerance
    • as tolerance decrease efficiency over time (thus also cost) and provoke health hazards
• learn how the peripheral nervous system works
  • how physiology, nutrition, posture, can influence it
    • and thus impact the central nervous system
      • and thus impact the higher order cognitive functions
    • Neural activity associated with changes in posture in Rhesus Macaques by A.J. Tate, M.A. Lebedev and M.A.L Nicolelis, Soc Neurosci 2009
• Optimal Daily Experience by Seth Roberts, Seth’s blog March 2010
  • http://sethroberts.net/articles/2010%20The%20unreasonable%20effectiveness%20of%20my%20self-experimentation.pdf Medical Hypotheses April 2010
• Robert Sapolsky On Depression in U.S., Stanford University 2009
  • Wikipedia:Anhedonia
• Tea and Coffee Consumption and Cardiovascular Morbidity and Mortality by de Koning Gans et al. 30 (8): 1665, Arteriosclerosis, Thrombosis, and Vascular Biology 2010
• consider or check
  • GreenGooseTrack your lifestyle, wireless sensors integration
  • Wikipedia:Intermittent fasting

See also

• own resources
  • in New Concepts page
    • Cyberchondria
    • Genic capture
    • Regulatory capture
  • reading notes on
    • Intelligent Bioinformatics
    • The Wisdom Paradox
  • resources on Brain Imaging
  • Meditation
• NIH VideoCasting and Podcasting, US
  • Neural Plasticity and Diversity in the Adult Mammalian Brain, NIH VideoCast on March 2011
  • A Look at the Unconscious Brain Under General Anesthesia, NIH VideoCast on March 2011
• OpenYou including Emokit and libfitbit projects
  • added to Electronics

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